The biopsies and blood tests have been completed, and rare blood mutation & # 39; Mughal Zainab explained, her parents went to a complication in & # 39; helping in the fight against cancer of their -tifla. To survival & # 39; two leads to something that had no control over: Type & # 39; overseas.
Zainab, who lives in Florida in the United States, has been diagnosed in & # 39; & # 39 by October, neuroblastoma, an aggressive cancer that usually occurs in children. Doctors said the tumor was growing inside the abdomen & # 39; Zainab for almost half her life. Fighting it requires two bone marrow transplants and a series of & # 39; transfusions to replenish its supply of blood by chemotherapy to shrink the tumor to nothing, said doctors.
"The results came and the results were really bad," her father, Mughal Raheel, said video. "We were all crying. It was like the worst thing I was expecting."
There were other big complication: Mughal and his wife have been tested to see if they were compatible blood donors. They did not. Parade & # 39; family and friends came to hospital to be pierced with needles. No luck.
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"And that's when it became more & # 39; warning," said Mughal.
Now, the child & # 39; two is in the center of & # 39; search worldwide to find donors with the same extremely rare blood can & # 39; help, battle dependent on statistics and probabilities that her parents have become too familiar.
People that & # 39; likely to have adequate blood are & # 39; Pakistani descent, Indian or Iranian, according OneBlood, the blood center non-profit that is leading the search. But even in & # 39; those populations, less than 4 percent of people have blood to the body & # 39; Zainab will not deny.
Most people never have to face the world & # 39; rare blood transfusions & # 39; often hidden.
There are some 360 different antigen on of the red blood cell surface, but most people do not respond negatively bodies for those brands, said Frieda Bright, laboratory manager & # 39; reference & # 39; OneBlood. For most people, getting the right type of blood is all that is important.
But a small percentage of & # 39; people – including Zainab – produce antibodies in the presence or absence of & # 39; some antigens, forcing the body to refuse blood. But those people still come in & # 39; accidents or leave b & # 39; diseases like everyone else, so there network & # 39; blood centers specializing in & # 39; rare my blood, maintain a database of & # 39; scarce combinations of & # 39; antibodies and pass it around the country to patients in need.
That is a big part of the work & # 39; Bright. Is part of a team working around the clock, 365 days a year, to identifying and cataloging units & # 39; blood rare and, when possible, meet the demands. Still, the event & # 39; Zainab is so rare that Bright – who worked in the industry for 20 years – had to go on book & # 39; test to learn more about it.
Now OneBlood working with American Rare Donor Program, an organization that donors attach to & # 39; patients in need worldwide. For Zainab three found compatible donors – live in & # 39; London, the other two are in the United States.
That is a promising sign, but not enough. The rules limit unless donors can donate blood. The doctors & # 39; Zainab have a list to ten donors to ensure that whenever Zainab need a blood transfusion, it can & # 39; get.
It is the missing piece of & # 39; plan & # 39; treatment that doctors say they are already shrinking the tumor & # 39; Zainab.
More than 1000 person & # 39; Iranian descent, Indian or Pakistani donaw blood in & # 39; an attempt to see whether they are compatible with & # 39; Zainab.
But her parents and team & # 39; experts realize that not completed until Zainab discharged from hospital, free from cancer. So they launched a campaign & # 39; awareness with better weapons to: history & # 39; Zainab, and an endless stream of & # 39; adorable pictures – sometimes without toothless – baby. It shows young children to wear a cap & # 39; closing and pink polka dot dress, another show it to put a photo with & # 39; color colored flowers and ribbons in her hair. Third, post-diagnosis, show a huge brown eyes under head bald.
She is too young to fully grasp the seriousness of & # 39; what needs or huge odds in & # 39; against piles. But her father hopes that one day it explains how a group & # 39; people who did not know helped save her life.
"It is a humble request, and nistaqsiha from my heart", said Mughal f & # 39; film composed OneBlood. "The life & # 39; child depends largely on blood …
"What you are doing to save human lives, to save lives & # 39; child, it is amazing. Once my daughter grows, I remind you that the effort done for you to save your life."